A Letter To My Daughters First Friend

[vc_row][vc_column][vc_column_text]To My Daughters Very First Friend,[/vc_column_text][vc_column_text]Today my daughters developmental assistant told me that Hayden had made a new friend today; that friend was you.[/vc_column_text][vc_single_image image=”2998″ img_size=”large” alignment=”center”][vc_column_text]I was told that you had been curiously eyeballing Hayden for the last few days of preschool and that you made the decision to come over and introduce yourself.…

Should we have another?

[vc_row][vc_column][vc_column_text]Before we decided to have another child, we always questioned on whether or not we should expand our family. At the time Hayden was constantly in and out of the hospital, her epilepsy was out of control, sometimes exceeding 80 seizures in a given day. The level of care and attention she required was extreme.…

Today Was The Day

[vc_row][vc_column][vc_column_text] I’m going to preface this post by saying that I fully expected the outcome of today, it has been something that I have felt and known for a long time, however that doesn’t mean that it was easy to manage emotionally. [/vc_column_text][vc_single_image image=”2682″ img_size=”large” alignment=”center”][vc_column_text] Today was the day that my sweet little girl…

Hayden

We’re very happy to introduce our little Miss Hayden, she is three years old. She was born with an extraordinarily rare condition referred to as a micro deletion on chromosome 21; more specifically 21q22.12q22.13 micro deletion syndrome. She is the first one known with her specific deletion break points. Essentially what this means is that…